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A Boy, A Girl, and The Marine Corps: A Love Triangle: I would like the Special-ist

A Boy, A Girl, and The Marine Corps: A Love Triangle

"I cast my lot with a Marine and where he was, was home to me." ~ Anonymous.

Thursday, July 14, 2011

I would like the Special-ist

So, I met with the very specifically trained, special surgeon at UW today.

I LOVE him.  He is not doing the surgery either, but not for the same reasons.  1. He actually believed me when I told him I have pain/issues and reflux.  2.  He didn't assume that because a test data sheet said I was "normal" that the test was 100% correct.  3. He listened to me.  4.  He agreed that something was wrong.

He said I do have reflux issues but that they weren't surgical.  The reason being that the discomfort and complications of surgery were not worth it.  He said I have reflux and it's a problem, but that the surgery wouldn't make a significant enough difference in my symptoms to be worth all the stuff that comes with it.  He said that he only likes to do the surgery when the discomfort is truly high.  Makes sense to me.

But he also said he thinks there is more going on and that he feels it's "a complicated issue that needs more specialized attention," and that it's not as "black and white" as my other doctors are making it out to be.  He is referring me to another otolaryngologist.  But one at UW.  He said he feels that it's not that "nothing is wrong," it's that I probably haven't seen the right doctor who knows to run the right test. He said ENT's and such are usually a specialist, but they only see "normal" stuff.  So when someone like me comes along, with symptoms that don't make sense, they assume it's not their issue and send me to someone else.  But at UW, the specialist all have sub-specialties.  My surgeon for example is a surgeon, but he only does esophageal and gastric surgeries.  So, he's sending me to an ENT at UW, so that I can see someone who specializes in just what is wrong with me.  That way, it's more likely that they can find a root cause.

On the one hand, I'm happy.  I'm happy that I am getting closer to having an answer.  On the other hand, I still don't have answers.  I still don't know what is wrong.  And I'm still unemployed as a result of all of this.  It's a mixed bag.

I'm also slightly terrified that something is REALLY wrong with me.  As in, really, really, not ok.  Reflux causing a bit of pain is one thing.  That is wrong, but a normal sort of wrong.  Lots of people have reflux.  But I have a mystery diagnosis that is causing fluid in my ears and congestion and sinus pain... What if it's something really bad.  Like a tumor or some crazy disease or some crazy autoimmune something!?  I'm all kinds of anxious right now.  I'm trying to not think of things like that, but I can't help it when normal medical reason has failed me.

Either way, I'm on my way to an answer.  Good or bad, I just want to know.

2 Comments:

Blogger MrsMcDancer said...

Awesome that this doctor really took the time to listen. Hope you get some answers soon!

July 14, 2011 at 8:14 PM  
Blogger chambanachik said...

Glad this guy sounds better.

July 15, 2011 at 6:19 PM  

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